Monday, September 6, 2010
...tomorrow is the day - school starts and I am still worried...
"Mama, I am so excited for tomorrow..." Alena whispered just before she fell asleep tonight. Oh, how I wish I could say the same. I think that I am more anxious than anything. What will it be like? What will the teacher be like? What will it be like for her to be in school from 8:35 - 3 PM every day? And the really big question for me, what will she be doing during that time...the questions are endless, and so is my worry. We had a last summer hooray and spent four days in Sunriver. We got back yesterday, and we finally received the school package. Alena is assigned a teacher and I would have loved to speak with her BEFORE school starts, but oh well. The registration form lists special medical information and states "METH BOLIC Disorder"!!! OK - I understand time and money is at a premium, but has anyone ever heard of this??? Also, I know for a fact that I wrote Classic Galactosemia, Metabolic Disorder, NO MILK or MILK DERIVATIVES all over the registration form...This really worries me. But hey, I need to get back in the swing of things and think positive, right?! The upside really will be the commute - walking distance, and hopefully neighborhood friends. So for now, I will attempt to funnel positive energy to the school start tomorrow. But believe it or not, this is - right now - actually a true challenge for me. I have to remember that the glass is half full....
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5 comments:
((hugs)) it will be sorted out soon, don't worry... I type this as I'm watching the clock waiting for my girls to come home from their first day and I'm sick to my stomach with worry.
Alena is smart, she knows what she can have, she'll put those teachers in their place :)
Caden has done really well and the food aspect has been pretty smooth. He's in 1st grade this year, so an old hand at school ;-) The biggest change for ME was having to send food every day - I went through the cafeteria with the super nice staff, but we basically determined that very few if ANY of the offerings are "OK". Sigh... this was a big mental hurdle for me initially because I had such a nice system down with his preschool where I only sent food some days to supplement dairy-heavy offerings. But now, one year in, it doesn't seem like such a big deal - lots of his friends bring lunch, too, and I've got the routine down. Hope it all went smoothly for both of you!
also, I have a letter about galactosemia I always send in to Caden's teachers... let me know if you'd like to take a look as a possible template for your own letter... I started with some of the teacher's guides (Texas?) and made it a little shorter and easier to follow. Had it cleared by our clinic...
Also, we bought a special bin (smallish rubbermaid storage bin) for Caden's teachers to keep in the classroom with some "safe" non-perishable snacks in case someone brings in an unannounced treat like cupcakes. Some oreos, fruit snacks, lollipops, etc... seems to work well and he doesn't feel that he's missing out (at least no TOO much!)
@Leslie - thank you very much! Alena - of course was OK - it's me having the issue :) How was Anna's first day?
@Christy - Alena is in 1st grade as well, but new to a Public School. We went from a cozy class of 16 kids to 27 kids...I always had to make lunches, so it is not really that different. I am working with the nurse to determine if there are any foods she can have. I am guessing hot dogs, salad from the salad bar, etc
Thank you so much for the suggested items for the treat box. I will also leave a box of popsicles & cuties in the nurses freezer. As far as I understand it, all "treats" will be somewhat unannounced....
I would love to see the letter you have created for the teachers. Do you mind e-mailing me a copy? Thank you!
@Christy - thank you!!!
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