Yes, it is true I am so nervous and almost beside myself with Alena entering 1st Grade. This is the first time that she will be going to a big, public school. So far, we had gone to a nice, safe, private PreK - K school and it was wonderful. I had communicated and educated the teacher's before the school year about Classic Galactosemia. It really has helped ease my worries in the past. But now? Well, school will start on September 7th, 2010 and packages will go out tomorrow September 2nd, 2010. I have tried to find out to whose class she was assigned to but apparently that information was - as of this afternoon - yet unknown. I have spoken with the Health Coordinator at the School System and she suggested that a 504 Plan be put in place for Alena. I just briefly glanced at it and am not certain that this is really needed. I think that we really just need a couple of things. First, find out who her teacher will be and communicate with him/her; and secondly have Alena's lunch card reflect the items she cannot eat.
Oh, how I miss my small, safe school....I am just so worried and cannot think of anything to make me feel better...
3 comments:
I completely understand! My daughter started kindergaren a week ago and my worse fear came true today. I advised the school...her teacher, the nurse...I even found out the birthdays of classmates so I could be prepared!! Today was a birthday and cupcakes were brought in by a parent. I made my daughter her own safe cupcake, told her not to eat anything that was not hers or in her backpack, and I reminded the teacher THIS morning. I told her that she had her own cupcake and do not give her anything!! I got a call from my mom, who picks her up, that my daughter told her that she had 2 cupcakes today!! My heart sank, tears began!!! To put my daughter's health in someone else's hand and this is what happened...I am sick!!! I have talked to the principle, got a message from the teacher apologizing...but I have lost the little bit of trust I had in her!!! Don't know what to do!!!!
Same here, Anna will be starting Kindergarten next week. She'll be gone from 8am till 4pm! luckily she be with her big sister and I do know the teacher and She called me today as I wrote all over the registration form "Galactosemia: NO Dairy!!" I know things will be alright but the nervousness doesn't stop!
@Jackie - I am so sorry to hear that. Totally unacceptable. How can you ever trust the teacher again? Fyi - in Alena's first year of preschool she ate some (Small amount) of yoghurt. Teacher called me immediately - horrified - and steps were taken to ensure it would not happen again. It sounds like your school is not working on a preventative action plan. That would be unacceptable to me!
@Leslie - that sounds like a good plan. Happy First Day of School, Anna :)
Beate
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