We have the results from the recent draw. Both girls have perfect levels!!! Did I mention, that dinner the night before the blood draw included lots of Parmeseano Regiano tomatoes and garbanzo beans? Yay....I am so, so very excited that the levels came back perfect.
We had our metabolic appointment on Tuesday and I had to pick-up the girls early. Neither was excited about the appointment out of fear that there would be a pain involved... To mix things up a little bit and make it fun, we did not drive up to OHSU today, but took the aerial tram. Both were excited to ride the tram...oh, and if you do not live in Portland and wonder what I am talking about here is the link to the aerial tram http://www.portlandtram.org/. The tram connects the upper and lower part of OHSU. It is quite amazing, and on a clear day you can see Mt. Hood :)
Our visits was great as usual. It did however stand out, from previous visits because this time we got the green light to expand on cheeses for the girls. Our new dietitian was very prepared and brought along the abstract of a British research study concluding which cheeses the British deem as safe. This fall adding Gruyezer, Emmenthaler, and Grana Padano Parmesan to the Parmesiano Regiano.Yay!!! FYI - Jarlsberg is also on the list, but I however am not a great fan.... Kaesspaetzle (= home made egg noodles baked with Emmenthaler & Gruyezer topped with browned onions) will meet new friends :)
Jokes aside - I am so thrilled to finally get the official green light on these cheeses from our Metabolic Clinic. Europeans have long advocated for Galactosemics to eat aged cheeses due to the calcium. And I do admit, that both kids have eaten Emmenthaler, as well as Gruyezer before just in small amounts. I limited the amounts as I was not certain how much would beOK....
What about you? Do you allow, or eat aged cheeses? Will you allow it? Do you like it? Does it worry you? I would love to hear from you!!!
6 comments:
This is fantastic to hear... thanks so much! I saw that same cheese study and asked our diatician for a copy. Pretty intereesting. We haven't introduced any cheese yet, but I do plan to eventually. I am more interested in the fact that you're allowing garbanzos - when did you start doing that and what did the diatician say? We have been very strict about all dairy (except occasionally sodium caseinate) and garbanzos, but have allowed pretty much everything else. I'm not sure whether Ccaden would even eat garbanzos, but it would open up some dinner options that used to be favorites pre-galactosemia... Have you tried hummus with the girls?
HI Christy -
our girls love hummus and I frequently make it for snack. We have never restricted legumes for Mia Rose, and Alena started eating them when she was around 3-1/2 or so.
FYI - we do allow sodium caseinate, etc. as we understand that even so it is derived from milk, it does not contain any milk sugar. The only items we do not allow are "straight" milk items, whey, powdered milk, casein, additions of milk....
Have a great day!
Beate
This was a hot topic at the conference last weekend. What age did you start introducing the more liberal foods? Our Annie is only a year old, and I'm afraid to go too far while she's doing so much developing. Maybe when she's older we'll think about cheese (although I still have to work my way up to "all fruits and veggies" so we have a way to go ;) )
~Robyn
@Robyn - thank you for your comment. Alena - as our first child - was on a more restricted diet w/until she was about 2-1/2. We never restricted Mia Rose in any fruits, veggies, or legumes. In regards to cheese, we introduced Alena to Paremsiano Regiano when she was around 4 years old, and Mia Rose when she was 2 years old. FYI - we are friends with a few families in Europe and they never restricted any veggies, fruits, legumes either plus they have been eating cheeses deemed safe for a long time. I will repost the post of our "eye opening" event.
Have a great day.
Beate
This is all so fascinating to me. Jackson is 21 months old, and I've become more lax with giving him fruits and veggies, but by no means go overboard as I'm still nervous. His levels are amazing, well below what they 'should' be, and he shows no real signs of even having CG other than all the testing says that yes, he does have it.
So, I'm always fascinated by what child eats what, as I am hopeful that in the coming years, his diet will be much less limited (with the obvious dairy exception).
Glad your girls are doing so well Beate!
@Tina - nice to hear that your son is doing great! That is wonderful!!! - Please note, that I do not feel that we are going "overboard" with allowing the girls all fruits, veggies, legumes, etc. as our physician has done research on this. In addition, from talking with families in Europe Ron and I both feel that the Acosta diet is outdated. Certainly neither of us would ever put our girls at risk.
This is most certainly so a decision for each family to make, and everyone has a different comfort level ;)
Have a great evening.
Beate
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